Today I was thinking about all the simple things that I take for granted.
When I talk I use my arms to express emotion.
When I have a question in a room, I raise my hand.
When I need to use the restroom, I don't think twice, I go.
When I'm Hungry, I go get food out of the kitchen.
When I drop something, I pick it up.
The list can go on and on. Most of us don't think twice about these actions. These are common everyday actions, that we do daily without help.
Then I think of all the boys with Duchenne. All of the above, is hard for them to do. Some of these items such as going to the restroom, they think 100 times over and over again on just how to ask the aide at school for help. When they drop an item, they have to WAIT for someone to get it. These are all common things that you and I do daily, yet most of us don't think twice or seem to care.
I have herd everything from boys with Duchenne not wanting to go back to school because its just not accessible enough and it takes too much energy for them to get around. To schools not understanding the needs, which goes back to my belief that if you don't live it you don't know it. Most boys with Duchenne cant go to private schools because they don't offer all the services that are in a public IEP, which I read this morning and made me so upset. These boys are being pushed from society simply because society doesn't understand the simple measures it should take. The common, healthy person is lazy, and only thinks for themselves. Not that I am saying all people are, but if we think hard on this, you realize that all public areas are made for the walking, non-wheelchair, self sufficient person. Why cant we just make ALL areas, computers, ATMS, schools, stores, ect.... accessible?! Society pleases only those who are "normal". Just my thought for today, take or leave it....
